Why me??

I have been ill for the past few months now, and not getting any better. :(
In comparison to my birth mother who also had this nasty illness (Demyelinating Leukodystrophy) I have gone down hill rather quickly, in a short time, which I am not too happy about - but what can I do? NOTHING. Except for cast my focus onto bigger and better things to come.
The past few months, since being diagnosed from this hereditory illness, I have been mixed up like a rubix cube, and at times very emotional. How do I deal with this? The easiest way I know how...and that is to be around people who can accept that I am changing, and who will always be there for me, and atleast mean it when they say it. The past few days has been like a part out of a horror movie...I have had hairloss, where my hair was practically dry and limp, and was unfortunately falling out in places, along with a drop in weight. Could this be me, fading away to nothingness? Hell no! Because no matter how hard this gets, for me or the people around me, I WILL be strong, positive and faithful to the bitter end. Why? Because so many good things are starting to fall into place for me now, and I want to see what happens to the what could be - 'fairytale ending'. In reality I know I may not have long left (from a medical point of view), but I want to make the most of however much time I have left, while I still have the energy (along with help from ACT Drinks, for the extra boost), and actually start doing something with my life. I have one, soon to be two businesses to focus on, I have a newish relationship which is blossoming and growing day by day, I have my kids - who I live for, and intend on visiting real soon. There is so much for me to do, that will keep me busy for a lot longer yet. I don't want/need people to feel sorry for me..that's not going to help me in anyway. I need people in my life now, who are uplifted, positive people. Yes - there are changes happening to me - but if you can't accept them as they happen, then sorry I do not have room for you in my life anymore.