New Diagnosis - Demyelinating Leukodystrophy

About 3 weeks ago.. I was confirmed to have Demyelinating Leukodystrophy. This is an illness that affects the Nervous System, nerve endings and affects the myelin sheath otherwise known as the white matter on the brain. So far how it has affected me, is in the left hand I have limited use, and do occasionally get muscle aches in my legs, and arms. However, I am determined to not allow this to affect me as I have so many things I want and need to do with my life - watching my kids grow up and start high school, and completing my studies and become a Counsellor. I have great support in my life now, with my family back home in Gympie, and in my partner, Adz. I was supposed to go see a specialist at the end of this month but that had to be rescheduled so won't be happening til end of February in the new year. And also have a lot to look forward to in the coming year..so will kept busy, one way or another.